Development of the Hong Kong Chinese version of the kidney disease quality of life short form (KDQOL-SF)

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Development of the Hong Kong Chinese version of the kidney disease quality of life short form (KDQOL-SF)


Author: Li, Cheuk-ming
Title: Development of the Hong Kong Chinese version of the kidney disease quality of life short form (KDQOL-SF)
Degree: M.Sc.
Year: 1999
Subject: Kidneys -- Diseases -- Patients -- China -- Hong Kong
Hemodialysis -- Patients -- China -- Hong Kong
Quality of life -- China -- Hong Kong -- Evaluation
Health status indicators -- China -- Hong Kong
Questionnaires -- China -- Hong Kong
Hong Kong Polytechnic University -- Dissertations
Department: Multi-disciplinary Studies
Dept. of Rehabilitation Sciences
Pages: vii, 141 leaves ; 30 cm
Language: English
InnoPac Record:
Abstract: Quality of life assessment is increasingly accepted as an important outcome measure in selecting optimal health intervention for patients with end-stage renal disease (ESRD) which has traditionally been perceived with severely diminished quality of life. The aim of this study was to develop a Chinese version of the Kidney Disease Quality of Life short Form (KDQOL-SFTM) to be used in Hong Kong. The objectives were: (1) to translate the KDQOL-SFTM from English to Chinese; (2) to assess the content validity of the Chinese version of the KDQOL-SFTM; and (3) to examine the internal consistency of the Chinese version of the KDQOL-SFTM. The original English version introduced by Hay et al in 1995 was used to develop the Chinese version. This instrument consisted of 36-items (SF-36) with 8 health scales as a generic measurement of health, 43 kidney disease-targeted items and an overall health rating item, with a total of 80 items. The SF-36 Chinese (Hong Kong) Standard Version 1.0 was used to replace the English version in the KDQOL-SFTM. The kidney disease-targeted questionnaire was translated into Chinese and then back translated into English by independent translators. The original and the back-translated versions were compared to examine their equivalence in terms of meaning and concepts. Content validation of the Chinese version was conducted with both patient study groups and expert panel review by health care professionals. Results of the content analysis revealed that the majority of the participants agreed that the kidney disease-targeted scales and items listed in the original version were comprehensive and culturally relevant to measuring the quality of life of Hong Kong Chinese ESRD patients. Both the patients and health care professional groups identified 5 items to be added to the questionnaire (3 items to symptom/ problem scale; 1 item to effect of kidney disease on daily life scale; and 1 item to work status scale). A pilot test was then performed to examine score distribution and internal consistency estimates for each scale of the Chinese version of the KDQOL-SFTM. Forty-three ESRD patients currently being treated with in-center haemodialysis (n=22) or continuous ambulatory peritoneal dialysis(CAPD) (n=21) were invited to score the KDQOL-SFTM. Considerable floor effects were present in the scales with dichotomous responses such as "work status", "role limitations caused by physical health problems" and "role limitations caused by emotional health problems". In addition, moderate floor effect was also observed for the kidney disease-targeted scale "sexual function". Moderate ceiling effects were present for the "social support" and "dialysis staff encouragement" scales of the kidney disease-targeted measure as well as the "role limitations caused by physical health problems" scale of the SF-36. Internal consistency reliability estimates, through computation of Cronbach's Alpha coefficient, for all multi-item scales were found acceptable for each measure (range 0.71-0.95). CAPD patients in this study demonstrated a marginal higher quality of life than the haemodialysis patients when comparing their mean scale scores. The results of this initial administration of the content validated KDQOL-SFTM Chinese version provide support for the item reliability of this instrument. Future research to examine the test-retest reliability, construct validity and its ability to assess the change over time is recommended.

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