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dc.contributorSchool of Nursingen_US
dc.contributor.advisorLeung, Angela (SN)en_US
dc.creatorLau, Terence Kenneth-
dc.identifier.urihttps://theses.lib.polyu.edu.hk/handle/200/14058-
dc.languageEnglishen_US
dc.publisherHong Kong Polytechnic Universityen_US
dc.rightsAll rights reserveden_US
dc.titleEfficacy of the voice-activated intelligent personal assistance (VIPA) intervention on psychosocial well-being among people with Parkinson’s disease : a pilot randomized controlled trialen_US
dcterms.abstractBackground:en_US
dcterms.abstractThe increasing prevalence of Parkinson’s disease (PD) underscores the need for tailored interventions. Despite their importance, positive health strategies and psychosocial well-being in PD remain understudied, requiring more empirical evidence to evaluate their effectiveness. This study used a two-stage sequential research process to develop a salutogenic-based voice-activated intelligent personal assistant (VIPA) user protocol and assess its feasibility and preliminary effects in people with PD (PWP).en_US
dcterms.abstractMethod:en_US
dcterms.abstractPhase 1: Fourteen participants with varying degrees of daily technical use were recruited via purposive sampling from local NGOs to participate in three exploratory, semi-structured focus groups. An interpretive description approach with inductive content analysis was employed to formulate the VIPA user protocol. Three other cognitive interviews were held to assess the protocol’s feasibility and face validity. Five experts specialising in psychology and information technology examined its content validity.en_US
dcterms.abstractPhase 2a: The Parkinson’s Disease Questionnaire (PDQ-8) was localised in collaboration with the copyright holder, Oxford University Innovation Limited (OUI). Four independent translators and the linguistic manager from OUI were involved in the dual front and back translation, with an expert panel of five healthcare professionals examining the translated scale’s linguistic equivalence and content validity. The face validity was examined through five cognitive interviews with PWP. Fifty-one PWP were recruited with convenience sampling from local NGOs to complete the PDQ-8, the EuroQol-5d-5L (EQ-5D-5L), the 13-item Sense of Coherence scale (SOC-13), the Mental Health Continuum Short Form (MHCSF), the UCLA 3-item loneliness scale (UCLA-3), and the Brief Resilient Coping Scale (BRCS).en_US
dcterms.abstractThe 8-week VIPA pilot randomised controlled trial (RCT) recruited 48 PWP. The intervention group (IG) participants received the VIPA user protocol, a training session, and were instructed to use the VIPA 10 times a day, along with access to a tele-support hotline. When control group (CG) participants received their usual care. The primary outcome was the SOC-13. The secondary outcomes were the MHCSF, UCLA-3, BRCS, PDQ-8, System Usability Scale (SUS), and self-reported VIPA usage.en_US
dcterms.abstractPhase 2b: Seven PWP were selected using extreme case sampling based on their SOC-13 score differences and participated in in-depth interviews exploring their VIPA user experiences. A hybrid thematic analysis, guided by the salutogenic framework, used both inductive and deductive coding approaches.en_US
dcterms.abstractResults:en_US
dcterms.abstractPhase 1: A VIPA user protocol with satisfactory face and content validity was formulated based on the overarching theme of Desirable design of psychosocial-oriented VIPA for PD, with three sub-themes: Versatile role of VIPA, All-in-one information hub, and Desirable designs in VIPA. The majority of participants valued the health-informative and assistive domains of the VIPA and identified secretarial and caregiving roles as the most helpful in managing PD symptoms, which could also connect PWP with readily available community and online resources.en_US
dcterms.abstractPhase 2a: The PDQ-8 demonstrated satisfactory internal reliability (Cronbach's alpha= 0.79 ), mean inter-item correlation (0.32), and item-total correlation (all items > 0.3, except for sigma). Significant correlations with the EQ-5D-5L index score (r = -0.63, p <.01) and visual analogue score (r = -0.36, p < .05), SOC-13 (r = -0.51, p < .01), MHC-SF (r = -0.50, p < .01), and UCLA-3 (r = 0.34, p < .05) scores were identified. No floor or ceiling effects were detected.en_US
dcterms.abstractIn the pilot RCT, the IG participants reported fair adherence (30%) and high retention (83%) with the VIPA intervention, with an average VIPA usage of 6.2 successful commands per day. The average SUS score was 60.25/100, indicating moderate usability. No significant mean differences or group*time effects were identified between the IG and CG participants on SOC-13 (β = -2.42, p = 0.36), BRCS (β = 0.59, p = 0.34), MHCSF (β = 0.20, p = 0.94), PDQ-8 (β =0.60, p = 0.59), and UCLA-3 (β =-0.12, p = 0.84). A significant group*time effect for emotional well-being of MHCSF, indicating a decrease in positive emotion, was identified in the post-test (β = 1.77, p < 0.05) but not in the follow-up test (β = -1.06, p = 0.25).en_US
dcterms.abstractPhase 2b: The overarching theme was identified as A promising tool to regain control over PD. Four main themes emerged from the explanatory qualitative interviews: Symptoms severity as motivation to comprehend PD via the VIPA; An auxiliary home-alone remedy to manage PD symptoms; Regaining control over PD; and Calling for a ‘motherly’ voice. The intervention was likened it to an electric wheelchair in bypassing their once disabling motor symptoms. Other participants reported with a suboptimal PD-friendliness user experience, with a sense of abandonment induced if they were unable to initiate a conversation with the VIPA.en_US
dcterms.abstractConclusion:en_US
dcterms.abstractThe VIPA demonstrated satisfactory applicability, acceptability, and feasibility on the participants during the intervention period and could serve as participants’ Generalized Resistance Resources in accessing assistive functions to facilitate their daily lives.en_US
dcterms.abstractThe qualitative data suggested VIPA could nurture PWP’s sense of control and autonomy within the SOC meaningfulness domain and address both of their problem-focused and emotion-focused needs. Participants recommended the VIPA to PWP with higher impairment levels or if those who were homebound to support their caregivers. Unsuccessful attempts at interaction sometimes resulted in feelings of abandonment, and were reflected in a temporary adverse effect on participants in the GEE model, but typically subsided after successful interactions. Participants offered suggestions for improving the VIPA’s PD-friendliness and for minimising undesirable emotions.en_US
dcterms.abstractThis study also validated an international QOL scale for local PD research and introduced a novel salutogenic technological intervention, a VIPA. This technological implementation was noted shifting the coping strategies of the participants towards a problem-focused approach for managing their motor symptoms and promoting their psychological well-being and meaningfulness domains.en_US
dcterms.extentxxiii, 250 pages : color illustrationsen_US
dcterms.isPartOfPolyU Electronic Thesesen_US
dcterms.issued2025en_US
dcterms.educationalLevelPh.D.en_US
dcterms.educationalLevelAll Doctorateen_US
dcterms.accessRightsopen accessen_US

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